End of Summer

Well after 5 good weeks of limited to no pain Trav went wake boarding .  Up until this he has been playing tennis and riding a bike almost daily.  No basketball yet.  The one other thing he has wanted to do before school started again is wake board.  So figuring his ankle would be supported enough with the binding he went and had a blast.  Did 3 runs and then crashed and sprained his ankle.  This was Monday evening 8/22/11.  It totally wipe him out of energy and he slept 14 hours or more.  By Tuesday night the CRPS pain was starting to come back.  By Wed it was getting more painful so I took him to a family friend who is also a physical therapist in town.  He was worried about the blood clots coming back and the cartilage.  So we got a MRI and ultrasound done Wed evening.  I had also called the pain clinic and scheduled a ketamine boost.
The MRI came back with no breaks or messed up cartilage.  The Ultrasound was good also.  The MRI did show some bone mass lose.  That has worried me until talking to the staff today at the pain clinic and they feel it is normal with how long he hasn't used the leg to have some bone mass lost.
So we went to Salt Lake today and got a Ketamine treatment.  They only did 4 hours and 35 mg per hour.  A few bolists  of 10 mg at once.  It was not as crazy as others but he was good a loopy.  He went in with a pain level of 7 and left with it about 5.  Its now down to maybe 3.  So our hope is he will continue to go down in pain.  he should be on crutches for the next week at least but I have a feeling that isn't going to happen.  he is grounded from major activity for a few weeks.  Also NO wake boarding the rest of the summer.  The dr. was happy that he got out and tried some activity also that the pain came back because he hurt his leg and not on its own.  That is a promising sign that he might beat this monster.
School started yesterday for Travis's senior year.  It wasn't the way he wanted to go back but he did.  Hoping Monday will be easier for him.  Our next pain clinic visit is Sept. 14 so hope all is good until then.

Aug 2011

So we went back for therapy on the 2nd.  Trav is doing awesome!!!  Gaining strength everyday.  It had been 2 weeks since our last visit and Elaine could see a difference with his walking and over all use.  Still can't jump or do much on uneven ground.  He can jump while in a pool and try running in the pool.  So that and a few other exercises he was told to try things and have fun.  We go back on the 16th. 

So yesterday Trav got a call from Joey a nurse at the U of U.  They want a good story to feature next month on the news to promote National Pain Awareness Month.  There is a week they feature chronic pain.  So they thought of Trav and his story.  I called them back today to get the scoop and give my ok for it.  They want to film him in school, home and rehab.  Go through his whole story and how they found something to help.  So excited for him and the hope of helping others with this nasty disease.   I will keep everyone updated as I learn when this is going to be.