Day 4 is WONDERFUL!!!!

Went this morning to the hospital not expecting much different then yesterday.  Pain was at a 9 to 10 on a scale from 1-10 being the worst.  They U of U  Dr.'s have a meeting everyday to discuss the patients.  So in this meeting Dr. Sri discussed with the others about upping his dose even though he was at the highest they should go already.  They got the ok for more meds so that they didn't run out by upping his dose.  So the day started at 20 mg.  After 20 min they boosted him with 10 mg over 10 minutes.  Then upped it to 35 per hour.  After about another 45 min they upped it to 40 per hour.

40 is the magic number!!!!  Trav started to feel the disconnected feeling where it hurts but he can ignore the pain. So the nurse Boone and myself encouraged him to work on moving his toes and little range or motion exercises.  Soon he was moving it like before he was hurt.  All of us are shocked so Boone goes to get  Sri and the PT Lynn.  So I ask if I can touch his leg.  Now even a cold sheet or a cool breeze would make Trav cry when it touched his leg.  I gently laid my hand on his calf.  It felt normal !!!!

Within the next few minutes Lynn had Trav dangle his feet off the bed and feeling the carpet.  Then we moved to standing and his first steps being pain free in 8 months.  The whole room was in tears!!!   Sri was on the phone trying to reach Dr. Junkins who is the main Dr. over Travis.  His regular PT Elaine was out sick so they got a hold of her and she was able to talk to Trav.  It was tears of joy from everyone that has watched all the other treatments fail and Trav's hope go down with each fail.  Trav hugged and thanked everyone for all they had done to get him to this point.  They got it all on video to show everyone and Trav encase he didn't remember.
So after celebrating they had him lay back in bed and rest to finish off the infusion.  No one knows if the pain will return  but we are all hopeful that this is the starting point of remission.  So far some of the pain has come back but thew level is at a 2.  His ankle is sensitive but still touchable.  Most of the pain is from not being used in so many months.  He will take it easy and slowly get back into using it.  We still have 1 more day of infusions but hope that it just makes his brain believe even more he isn't hurt and can use this leg.
Miracles do happen and prayers can be answered as long as you believe!!!!
These are links to the video I took today.  Pain free is me touching Trav's leg for the first time without pain.

pain free 

This one is of his first steps.  When we had started  today Boone had asked him what he hopped this would do and Trav was scared that he had forgot how to walk.  Just like riding a bike he didn't forget.

Walking