For many years the condition has been known as RSD or Reflex Sympathetic Dystrophy. The new name is CRPS or Complex Regional Pain Syndrome. Its a chronic neurological syndrome characterized by:
- severe burning pain
- pathological changes in bone and skin
- excessive sweating
- tissue swelling
- extreme sensitivity to touch
- color change in the effected area
One of the easiest ways to describe the pain is to say its like someone poured gas over you and lit it on fire. Pain meds don't touch it, in any way. Which is good as a druggy teenager isn't a good idea. But it sucks that he can't get any relief from the pain. He has tried them all. It took a 2nd pain clinic and a ER visit to tell us why pain meds don't work.
This is a great link to find out more info on
CRPS.
Now its rare but at the same time its not. A lot of people have a mild case or are just not diagnosed correctly. Its different on everyone and treated different too. That to me is the hardest thing to deal with is its not just 1 form of treatment and you get relief.
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